NED.....NED.....NED!!!!!!!!!!!

We just got the word from Dr. Kushner that Nick is still NED!!

Obviously we expected this news but we never take it for granted. Nick is doing great and really had fun pitching in his game last night. He is just getting home from school and will be pumped to learn that he is NED!

Here are a couple pictures. Can you tell it is baseball season?

Still Waiting

5 of the 6 tests are back and they are all clean. We are waiting on the urine test which for some reason takes the longest now. We turned the bucket in a week ago Wednesday and they tell me we will have the results tomorrow.....we'll see.

Nick continues to do great. He is at school right now and has a Little League game tonight.

I'll update once we get the final test results.

As many of you know the Pope visited New York last weekend. One of the kids we met at MSKCC got to visit with him and later I am told that he stopped by the Ronald McDonald house near the hospital and met with several kids.

http://www.news.com.au/heraldsun/story/0,21985,23571001-2862,00.html

Initial Tests NED!!

We just got the results for the CT, MRI and MIBG tests and they are all NED!!!

Now, we are waiting on the urine, blood, and bone marrow results which will probably come in either tomorrow or early next week.

Testing Done - Heading Home

We finished earlier than ever with all the testing. Everything went as smooth as possible with the only real hassles being the very early morning appointments.

Of course we don't have any results and I am not speculating but I know that if something lit up on the scan computers that they would have cornered us with the horrible news. We now have the agonizing 3-7 days to find out NED or not. We can't imagine anything other than NED.

We have a lot of normal stuff to get back to at home. That is if you call the activities of 4 kids normal. The reality is that anything other than cancer treatment seems easy. I'll update once we hear the news on the tests.

Back to New York

Hello from the upper east side.

We arrived about 11pm last night via Virgin America which is the only way to fly and promptly headed over to Wollensky's Grill for a midnight snack. They serve until 2:00am seven days a week so that was nice for us. The guy who paid for our dinner over a year ago recognized us and couldn't believe how good Nick looked. His last memory was skinny and bald and Nick is neither of those things now. When I asked him for the bill last year, he said....I know what you are here for and this one is on us.....pretty cool.

Anyway, today was the pre-boarding process. Blood tests, insert IV line, pick up the pee bucket, drink SSKI drops to protect against the MIBG stuff that he will get tomorrow, talk to the nurse practitioners and the docs. All that is done and the CT scan starts the process at 8:00am tomorrow.

Nick is in good spirits. These tests are nerve wracking but necessary and all we can think of again is NED.

Testing Next Week

It is hard to believe that 3 months have passed already. Nick is doing great and so is everybody else. We are so pleased to be back to normal and we want to keep it that way.

Once again we are dreading the tests in New York but we can't imagine that anything is wrong with Nick. He has been attending school, playing with his friends, and even playing Little League.

I have not updated the blog for a while because basically all is going great. I will update daily from New York next week and of course I will update once we here those wonderful letters of NED again.