Saturday, October 31, 2009

NED!!!

I never get tired of writing those three letters!

Dr. K just emailed me yesterday with the letters BM(-). That means Bone Marrow results were negative for Neuroblastoma!!! In my view, his communication skills are flawless as those two letters and a - sign are all we needed to know.

Nick is fired up for halloween tonight and is looking forward to watching the Yankees on TV. He plays in his own baseball game later today and is really enjoying it.

Friday, October 23, 2009

Back Home

Hello Nick Lynch Blog Fans:

I am a little slow updating .... sorry about that!!

We did a lot of waiting around this trip as the hospital was really jammed and slower than usual. However, we survived it all and got home late Wednesday night.

The good news is that both the CT and MIBG have come back clean!!!

So, now we wait the normal nerve wracking 5-7 days to get the blood, urine and bone marrow results. We are hopeful for another NED report and I will update as soon as I hear.

Until then, Nick is off to school and carrying on like nothing happened.

Tuesday, October 20, 2009

Perfect Fall Weather!

When we took off from San Francisco on Sunday the pilot said that New York was cold, windy and raining. Then he said....but don't worry about that because in five hours when we arrive it will be clear and cool but warming up.

He was right, yesterday and today have been great.

As for the testing process, it is the same as usual. We wait around and try to occupy ourselves while they treat the huge number of cancer patients that come here each day. Nick and I just sit in the waiting rooms and dig on our iPhones. He plays games and I read news and email.

The CT and blood tests are behind us now and then we have the MIBG early tomorrow morning followed by Bone Marrow surgery. We fly back home tomorrow afternoon.

Hopefully, I will hear some good results on the CT and MIBG before our flight leaves tomorrow.

Friday, October 16, 2009

October Testing

We head back to New York on Sunday for the dreaded 90 day testing process.
Nick is doing great and never even thinks about NY or cancer until it is time to go back. He has had a great three months fishing, playing baseball again, and riding his bike and scooter all over the neighborhood.
Here are some recent pictures from the school's Outdoor Ed program that he just returned from. I'll update daily from NY.